I have neuralgia, migraines (and though most people snort at that, mine are the kind that can knock you out), autonomic dysfunction (if you know what POTS is, it's like that only they refuse to call it anything but borderline since I don't present on tests), and autoimmunity that isn't diagnosed fully yet (they're at the 'wait and poke it with a needle' part).commando8 wrote:Look at it from another angle - sometimes you just need to be glad that you CAN write. I've wanted to be a writer for a long time now, but sometimes life has a way of making things as hard as they can possibly be. My challenge is physical - every keystroke, mouse click, moment I'm sitting down, and moment I'm staring at the computer screen is filled with horrible pain. I can't attend any writers conferences, conventions, or classes, and I can only imagine what would be like if I had go on tour and do some book signings! My body has given me every reason to give up, and yet I don't. Why? Because I WANT to be a writer, even if it's not in a professional sense, and even if it's as simple as writing a measly paragraph a day (which is about all I can do). Short of death, nothing is going to make me stop writing. NEVER GIVE UP!!!
Hope that helps a least a little bit...
I have to take a happy drug cocktail everyday that only marginally assists with the symptoms. The stuff that would really help, would make me sleep all day. I can't do that, because I have to work. I'm too proud to go on disability yet, though the brain is getting to the point that I'm probably going to need to.
I can sympathize. Last year the pain was getting so bad I wrote most the book's first draft on hydrocodone or alcohol. (Never both together, I'm not that stupid.) But then the liver gave out and I couldn't do that anymore. XD
Have you gone to a doctor? I have a friend who has EDS and she's in a lot of pain, too.